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Institute for Patient- and Family-Centered Care


IPFCC 2018 Conference
Baltimore, MD - June 11-13, 2018



Oral Presentations

Individual Sessions

WELCOME AND OPENING PLENARY SESSION: Partnerships for Promoting Health Equity and Reducing...

Product Number: 201810100
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TUESDAY PLENARY SESSION: Science, Story, and Stigma: Understanding and Effectively Respond...

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WEDNESDAY CLOSING PLENARY: Enhancing Partnerships with Patients and Families in New Models...

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A1: Accepting the Challenge: One Team's Journey to Authentic Engagement of Patient Family ...

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A2: Embracing the Voice of the Patient Through Active Participation on Hospital Committees

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A3: Engagement Capable Environments: Lessons Learned from Exemplar Organizations

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A4: Implementing True Welcoming on Inpatient Psychiatry

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A5: The Power of Personal Health Data: Exploring How Connected Health Benefits a Family-Ce...

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A6: Simulation-Based Education for Caregivers of Device-Dependent Children

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A7: Centro SOL: A Community-Academic Partnership Promoting Health and Opportunities for La...

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A8: Developing a Research Agenda to Prevent and Control Cardiovascular Disease in Central ...

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A9: Engaging Racially and Ethnically Diverse Parents in Developing Measures of Family Cent...

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A10: I Wish You Knew...Patients, Parents, and Providers Share Perspective from the Bedside

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B1: Eleven Years and Going Strong: Nourishing a Healthy and Thriving Family Advisory Counc...

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B2: Embedding a Culture of Patient- and Family-Centered Care: Patient Advisors Partnering ...

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B3: Patient and Family Involvement in Governance of Learning Healthcare Systems

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B4: Patients and Families as Leaders: Partnering with Patients and Families in the Design,...

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B5: Demystifying Patient Engagement: Principles and Strategies

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B6: No Show, Oh No! Engaging Patients and Families in Improving Appointment Adherence

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B8: Person and Family Centered Care in Mental Health and Substance Use Services: A Whole C...

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B9: Reflections on the Research Process and Communication Strategies in a PCORI-Funded Pro...

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B10: A Multi-Disciplinary Partnership to Create a Patient Story Workshop and Family Facult...

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C1: Pediatric Transition: Patient Advisor Roles for Positive Experiences Among Young Patie...

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C2: Partners Against Harm: Engaging the Family Voice in Infection Prevention

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C3: Collaborative Community: Driving Best Practices Among Patient and Family Advisory Coun...

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C4: The Spread of Interdisciplinary Bedside Rounding Across the Health System in One Canad...

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C5: Opening up Mental/Behavioral Health Notes Directly to Our Patients: Lessons Learned Fr...

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C6: Enhancement of a Guiding Framework for Patient and Family Engaged Care to Reduce Dispa...

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C7: Integrating Equity and Quality: A Multidisciplinary Approach to Hypertension Equity Th...

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C8: 10-Step: Mapping and Resourcing Patient and Stakeholder Engagement

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C9: Researcher-Patient Engagement: How Lived Experience Shaped Asthma Disparities Research...

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C10: Teaching and Role Modeling Patient- and Family-Centered Care from Day One: The Role o...

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D1: The Success and Challenges of Creating a Patient Advisory Committee

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D2: Patients as Partners: Neonatal Allies in Quality Improvement

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D3: An Unconventional Use of Lean Principles to Improve the Patient Experience at NYC Heal...

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D4: Improving Hospitalists' Communication with Patients and Families

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D5: Development of CenteringPregnancy Program for Latina Women in Baltimore

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D6: Testing a Culturally Adapted Family Model of Diabetes Self-Management Education with M...

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D7: Measuring Perceptions of Client-Centered Care by Clients, Families, and Staff in an Ad...

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D8: Partnering with Patients and Families to Advance Kidney Research in Canada

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D9: Partnerships in Research: Supporting Meaningful Engagement of Patients and Families on...

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D10: Developing Leadership Skills for African American Patients with Serious Mental Illnes...

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E1: The Journey of the Development and Growth of the Family Advisory Council at Maria Fare...

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E2: Patient and Family Surveyors: Quality Detectives Par Excellence!

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E3: Powerful Partnerships: Patients and Families Drive Enhancements in the Children's Merc...

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E4: Leading Patient and Family Centered Care in a Matrix Organization - Opportunities, Cha...

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E5: Better Together: Partnering with Families - Education and Support for NYC Hospitals

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E6: Engaging Patients in Preparation to Transition Safely Between Ambulatory Settings

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E7: Engagement Practices Among High-Performing Community Organizations Pursuing the Triple...

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E8: Infant Mortality Reduction Initiative: Bridging Medical and Behavioral Health Strategi...

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E9: PFCC Tools and Dashboard: Integrating a System Approach

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E10: Developing a Multi-Level Model for Patient Engagement in a Practice-Based Research Ne...

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F1: PFAC Statewide Collaboration to Improve Patient/Family-Centered Care

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F2: Partnering with Peer Mentors to Improve Outcomes for Patients with Diabetes

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F3: Families at the Forefront: Making Patients' Families Strategic Partners in Driving Hos...

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F4: Patient and Family Centered Care and Infection Prevention Efforts for Pediatric Spinal...

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F5: The Centering Healthcare Model: A Model of Patient- and Family-Centered Care to Achiev...

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F6: Sharing Our Medicine - Taking Steps in a Journey to Indigenous Culturally Competent Ca...

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F7: Peer Navigation in Transgender Care: A Case Study in CoDesigning Care

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F8: ORIEN: A National Partnership to Promote Data Sharing and Collaborative Learning to Ad...

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F9: New Standards in Blood Collection: Lessons in Patient-Inspired Innovation

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F10: Patient Empowerment in the Age of Digital Health: What Do Patients Say?

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G1: System Development of Patient Family Advisory Councils to Partner with Local and Syste...

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G2: Light and Joy: Creating Opportunities for Collaborative, Intersectional Care for Trans...

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G3: Partnering with Patients and Families: Building a Region for Patient and Family Centre...

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G4: One Hospital's Journey Adapting a Traditional Intensivist-Led Intensive Care Unit Mode...

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G5: Building an Effective Health Care System Through the Voice of the Customer

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G6: Implementing Effective Strategies to Increase Access to and Utilization of Health Care...

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G7: Diverse Representation to Promote Diversity, Equity, and Inclusion: Integrating Patien...

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G8: Stigma: An Impediment to Good Health Outcomes

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G9: Engaging Affected and Under-Represented Communities in Research Priority Setting and F...

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G10: Carrying the Load: Improving Clinical Outcomes by Strengthening Patient/Family Caregi...

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H1: Engaging Immigrant Latino Families as Patient Advisors

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H2: Engaging Partners, Growing Leaders: Partnering with Patients for Improvement

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H3: Patient Family Advisors in Merger and Acquisition Transitions: The Constant During Tur...

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H4: Enhancing the Practice of Family Centered Rounds for Parents and Providers in Pediatri...

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H5: Meaningful Partnerships: Utilizing Patient and Family Advisory Council Led Quality Imp...

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H6: Innovations in Patient and Family Engagement Across the Care Continuum

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H7: LGBTQ plus PFAC: A Strong Voice for Equality, Diversity, and Inclusion in Healthcare

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H8: Research Family Partners: Creating a Program to Train, Maintain, and Measure Caregiver...

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H9: From Community-Based Participatory Research to Community-Based Participatory Healing

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H10: Simply the Best at Every Encounter: Adding Value to the Care Experience Through the V...

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I1: E-visors: A Quantum Leap in Patient/Family Advisory Participation

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I2: The Power of Patient and Family Partnership to Effect Epic Organizational Change

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I3: Lead, Listen, and Build: Creating a Center for Transgender Health in Academic Medicine

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I4: A Collaborative Approach to Teach-Back: Bringing Together a Patient Partner, Patient E...

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I5: Partnering with Families to Design an Autism Friendly Patient Experience in an Ambulat...

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I6: Capturing the Voice of Patients and Families with Limited English Proficiency and Impr...

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I7: How Can Patient and Family Caregivers, Providers, and Researchers Create New Informati...

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I8: Our Strategy for Safety: How We, the Patients, Shape Strategies and Action Plans to Im...

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I9: Patient/Family Advisors' Perceptions ? Participating in Qualitative Research

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I10: Integrating the Patient and Family Voice into Medical Professional Educational Confer...

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J1: Successful National Telephonic Peer Mentor Program: Review of National Kidney Foundati...

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J2: Bringing Patient and Family Advisors to Comprehensive Unit-Based Safety Programs (CUSP...

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J3: A Checklist for Creating an Enterprise-Wide Infrastructure to Promote Family-Centered ...

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J4: Promoting Family Engagement During Critical Illness: Strategies for Success

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J5: Partnering with Patients and Families to Enhance Quality in Primary Health Care, Nova ...

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J6: Care Plans: Co-Producing Care in a Safety Net Healthcare Organization

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J7: Roadmap to Health Equity: How Person and Family Engagement Can Help Hospitals Achieve ...

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J8: Patients as Full Partners in Health Standards Development

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J9: Parents and Healthcare Professionals Co-Designing Mobile Technology and Care-Delivery ...

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J10: Integration of Patient/Family Advisors into Interprofessional Education Teaching and ...

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K1: Strengthening Patient- and Family-Centered Care: Building Parent Partnerships in Quali...

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K2: Engaging Patients and Families in Co-Writing the Future of the Patient Experience

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K3: The Evolution of Patient and Family Engagement: Insights from Four National Collaborat...

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K4: When Clinician and Patient Cultures Clash: Lessons from OpenNotes Implementations

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K5: Pursuit of Health Equity: Progress, Challenges, and Promise

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K6: Practicing Effective Communication and Building Trust Between Patients and Researchers...

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L1: From Passive to Active: Tips for Engaging Advisors Virtually

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L2: Parents Taking the Lead: Integration of Parent Navigators into the Primary Care Medica...

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L3: Combining Patient Centered Care and Lean Principles: A Successful Framework for Cultur...

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L4: Keeping Caregivers in Focus in the Emergency Room

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L5: "Centering": Building a Village to Promote Health Equity for our Community

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L6: Reduce Healthcare Disparities with Inclusive and Caring Communication

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L7: OPEN SESSION

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